Monday, March 1, 2010

Hiatuses and Hermits...

thorpe inspired hat

Hello my friends, I know I've been gone for a wee bit longer than I said I was going to be, so I figured it was about time that I come out of my hermit hole and let everyone know what has been going on. Before I do that, let me first thank all of you that emailed or left comments of concern! I'm sorry that I didn't write back, but I did read all of them. As a matter of fact I haven't been doing a whole lot of anything until recently. I've been hiding out like a true hermit! But I am starting to feel better.

A little bit of a back story about me. I have something called a Chiari Malformation. (if you want to learn more about this condition here are some links www.asap.org and www.ninds.nih.gov ) I've had the surgery and for the most part I can get along with day to day activities without too many problem but about once a year I do something stupid and injure myself and irritate the condition. This time it was doing an exercise program that involved too much jumping right before Thanksgiving. Once this happens, I end up with horrible head pain, neck pain, and headaches 24/7. Then the fun starts with trying to adjust my medication with my neurologist so we can find a happy medium were I'm not in too much pain but not overly medicated. On a good note I've been diagnosed with fibromyalgia. Ok so not a good thing normally, but he was able to put me on a new medication that has helped me with a lot of other problems I've been having!!

So this is where things stand at the moment with me. I have been baking again and I hope to start blogging about that, but the Tuesday toppers are still on hold until I can get back into the groove of things, which I hope is soon, but I'm not giving any guarantees ;D.

Julie :D

50 comments:

  1. hope you ll feel better soon. glad to have you back

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  2. take care of yourself. get better soon. God bless!!

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  3. Glad you're starting to bloom again! Please continue to get better. We have missed your great tutorials but we want you to be up to par before you start worring about that.
    Rita-Greer, SC

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  4. so sorry to hear how sick you've been. hope everything works out for the best. be well. stay strong.

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  5. Steamboatwillie33 ( Diane)March 1, 2010 at 1:47 PM

    Oh Julie I wish you a speedy recovery!
    I had been wondering where you had been,wishing it was a much needed vacation of sorts.
    Sorry to hear you were under the weather.
    Glad your starting to get back to your old self an wish you the best.
    Diane

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  6. Thanks for the update. I will pray that God continues to bless you with good health and ever lasting strength!

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  7. I saw the frosted cake & cookie in my email inbox and was glad to see a post from you. I've have checked the site occasionally and wondered if everything was okay with you.
    Glad to see you are feeling better and hope you continue to improve.
    Dawn

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  8. Glad to hear from you again. I pray the Lord continues to heal you and give your doctors wisdom in treating you.
    Aloha,

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  9. I'm glad you're feeling well enough to think about starting back up. your toppers and photos are simply beautiful. Take care and try not to overdo it. We want you back full force!

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  10. Thanks for the update, glad to hear your doing better and wish you a contiued recovery. Take care we'll still be here. :)

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  11. Glad to hear you are ok, and sorry you have been going through some things. hang in there we are all praying for a fast recovery!

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  12. So glad to hear from you again. Hope that you feel better soon. Looking forward to seeing your goodies again.

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  13. Oh and I just love your cupcake scarf and hat. You are so talented with so many skills!! Please do post the pattern when you are up to it. Thanks.

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  14. Very sorry to hear of the difficulties you have had. So glad to see that you are making a recovery. Wishing you a speedy return to all that makes you happy.
    Mimi

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  15. You are such a beautiful girl...be well and take care of yourself! Everything else can wait! All the best, Amy :-)
    CakesUniqueByAmy.com

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  16. I was sooo happy to see your email in my inbox. you have been missed. I wish you all the health and happiness.

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  17. I ditto all comments above! Glad to have you back!

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  18. I too am glad you are back. I had noticed that there had been no postings for a while and wondered what was going on . Hope you are better
    and up to showing us more wonderful creations

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  19. you have to take care of yourself first
    get well soon!!

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  20. Julie, so good to hear that you are on the mend, we miss you so much and value all that you continue to share with us. God speed!

    Sharlaine

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  21. Julie,

    I will keep you in my prayers. Please take care and we will always be here waiting to hear how you are doing.

    Diane

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  22. So glad you are back. Hope you start feeling better soon. Thoughts and prayers going your way.

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  23. take care of u 1st and foremost-good things come to those who wait...

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  24. Hope you get well soon.

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  25. What a trooper you are! I'm glad you're feeling better and hope that continues on!!! :) Take care!

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  26. Just dropping by to let you know ur blog is such a true joy to read, love the projects...and the artistic side of it sure inspires me...hope you feel much better!!! I know your regular readers can wait like i do (am just a silent one..hehehehehe), rereading your post is like rereading one of my dearest cookbook that i always keep next to my side of our bed at night (can't get enough of it..)

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  27. Hi,
    I also have Chiari Syndrome and fibromyalgia. I know how hard it can be. I was wondering, what is the medication which helps with fibro as I havent' been able to find anything that helps more than hurts (with unpleasant side effects). My email address is dsummerstay@gmail.com
    thanks,
    Lesli

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  28. Good luck to you! My thoughts and prayers are headed your way!

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  29. I'm so glad to hear from you! I'm Marianna46 and I've been following your Tuesday Toppers and other projects on CC and YouTube. You've been on my mind a lot, since we hadn't heard anything from you in a while. I hope you're feeling much better and that every day will bring you a little closer to being back at the top of your form. I really miss the Tuesday Toppers and all of your work, but I'll be glad to wait as long as you need - health is first, second and last, always. I'm sending you some special get-better vibes. Can you feel them yet?

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  30. I'm so glad that you're feeling better! I have Arnold Chiari Malformation too - but at a much milder "level".

    Thank you for your inspirational toppers - they always make me smile!

    Hugs - Wendy

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  31. get better soon, I send you all my good vibrations!!!!

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  32. I stumbled across your blog a couple of weeks ago and have been checking in everyday since, hoping that you had come back. I'm so glad you are still here! I love everything in your blog, you are marvellous. I really hope you get fighting fit soon and able to be your sparkly best again. Gayna x

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  33. Sorry to read that you have been not feeling well... hope you get better soon... :)

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  34. I am so glad you have put an update, you have been missed! Your Tuesday toppers is one thing i looked forward too every week! But your health is more important and i wish you a healthy and restful recovery! Please keep blogging when you can, your followers will still check up on you, no matter what you blog. :D

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  35. Wow, that sucks. Get well soon! I'll look forward to hearing from you when you're feeling better.

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  36. Be strong! Good Luck!

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  37. Oh wow! Wish you a speedy recovery! Hope to see you back in action soon!

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  38. Wishing you a speedy recovery. Love all of your fondant tutorials.
    I know all about your condition. I work in high risk obstetrics and my sister in law has chiari malformation as well. She too had surgery to make things easier and less pain about 7 years ago. Rest up feel better and I know we all can't wait for you to come back and see what you have been up to!
    Shanna
    http://acupfullofcake.blogspot.com/

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  39. I am glad things are settling down for you, and the pain has lessened. I love to see your projects, and am glad you are getting back to doing things you love! I look forward to your creative ideas!

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  40. Julie, I am so happy to hear that you are OK, well I'm also sorry that you have not been well. I know how much of a toll that can take on everything in your life. Wishing you a speedy recovery (well to the best of your recovery ability) so that you are more like yourself and able to do what you love again. Take it easy and remember to take care of yourself!

    Annette

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  41. dear Julie,

    i'm sorry to hear about your condition but i'm glad to know you are a strong person and i know you will do very well. it's good to know that now you are well and start to get back on your feet again =) take care Julie and keep up the good work! muaks!

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  42. im glad to hear from you. hope u get better soon ^^

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  43. I love your site and will be as patient as you need. Feel better soon.

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  44. So glad to hear you're okay! You have been MISSED! Take good care of yourself!

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  45. I came across your blog when I was searching for monkey cupcake ideas for my son's 1st birthday!

    I am glad to see that you are doing better. My mom also has Arnold Chiari Malformation and does the cake thing. I find it encouraging that other people are dealing with the same things in life and are making the best of a somewhat bad situation.
    Praying for you.

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  46. glad to have you back- your tutorials are great!

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  47. Julie,
    How crazy. I was just watching something about that on TV last night. Its also very similiar to POTS (postural orthostatic tachacardia syndrome) in which I have. So I know how frustrating it is to feel like crap all the time. Please email me I would love to talk with you about things that help you feel better. twinoaks427@yahoo.com. Thanks!

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  48. I sympathize with you. I'm a cake decorator in addition to a M-F job and I have Fibro too. It sucks, but as you said it's nice to know why all the other stuff was wrong and be able to give it a name.
    Best wishes to you!
    www.creationsbylisa.com

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  49. Hi Julie, I just found your blog this evening it is brilliant!!!! I Also sympathize with you, I couldn't believe it when I saw that you have chiari as I also have this condition as well as syringomyelia and hydroceaphalus. I've had two decompression surgeries and have a VP shunt. If you ever need someone to talk to that knows exactly what your living with then please feel free to e-mail me. Here's wishing you a pain free day, Kez x

    kesdineen234@talktalk.net

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